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About Special Needs Trusts

Frequently, in my elder law practice, I have the task of helping clients with the creation of Special Needs Trusts for the benefit of persons with disabilities. Such trusts help preserve an inheritance or financial windfall for an individual receiving governmental welfare entitlements, such as Supplemental Security Income or Medicaid. The Omnibus Budgetary Rehabilitation Act of 1993 (OBRA ‘93) profoundly redefined the concept of the Special Needs Trust, and its inter-workings with welfare entitlement programs.

Special Needs Trusts (SNTs) can generally be divided in to first party or third party trusts. The first type is created with a special needs beneficiary’s own funds received from various outside sources; for example, a will bequest or personal injury award. The third party SNT, on the other hand, is created with funds from assets belonging to someone other than the special needs beneficiary; for example, a parent’s or grandparent’s bequest by will.

SNTs are considered grantor trusts for IRS purposes. As such, taxation of income is reported on the beneficiary’s return, for whom a K-1 is provided. The appropriate practice is to prepare a 1041 with a “grantor letter.”

One must take into consideration the various ways in which certain governmental programs interact with SNTs with regard to income, resource, transfer and disbursement issues. Generally, the SNT must be restricted to providing the disabled beneficiary with only “special needs” or items that do not supplant what monthly Supplemental Security Income (SSI) payments are meant to provide (i.e. food and shelter).

When dealing with Supplemental Security Income and its effect upon SNTs one must be aware of the rules involving expenditures made from a Special Needs trust account for the benefit of an SSI recipient. Otherwise, the amount that an SSI recipient receives each month for his/her Supplemental Security Income may be reduced, and may otherwise have disastrous effects upon the recipient’s other related entitlements, such as Medicaid.

One such expenditure rule goes by the name of “In Kind Support and Maintenance” (“ISM”). Disbursements from an SNT might be viewed through a three step formula to better understand the effects such expenditures will have upon the SSI disbursement and related welfare entitlement programs:

  1. Disbursements from a SNT for purposes other than food or shelter will not reduce a beneficiary’s SSI monthly payment as long as that disbursement is made directly to a third party,
  2. Disbursements of cash directly to the beneficiary will reduce the recipient’s benefits dollar for dollar until the SSI payment is totally eliminated, which may then result in the loss of the recipient’s valuable Medicaid medical coverage,
  3. Disbursements from the SNT for the benefit of the recipient directly to third parties for items of food or shelter (referred to as “In Kind Support and Maintenance”) will result in a maximum reduction of an SSI monthly payment to approximately one-third of its original amount, but never beyond the “presumed maximum value”.

Conclusion

Special Needs Trusts serve to raise the very quality of life of welfare entitlement recipients who might otherwise be doomed to a more meager existence as dictated by these programs’ income and resource caps. Not only would some of life’s more basic amenities be denied, but more critically, essential services would simply not be met; such as dental care and other types of medical care not covered under Medicaid, and which the recipient could never afford, but for the resources available in the Special Needs Trust. As long as the trustee is able to pay for these goods and services directly to third party venders, the reduction of the SSI recipient’s monthly SSI payment will not be reduced beyond a set maximum value. Hence, the recipient’s valuable Medicaid coverage will not be lost.

 

The Law Office of Ernest M. Schlereth

 

Important disclaimer:
The rules governing Medicaid eligibility, especially in the area of asset tranfers, are very complex and subject to change. The material contained in this website, especially that regarding Medicaid and Medicaid Trusts, is meant as an informal, general overview. It is not a substitute for sound, individualized legal advice.

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Composed for: Ernest M. Schlereth
Ernie Attorney
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